Baby dubbed ‘poorliest baby in north east’ fights for life after heart flipped to wrong side
A newborn is thought to be the ‘poorliest baby in the north east’ after she was born weighing just 4lbs and her heart flipped over to the wrong side of her chest.
Little Ayda Murphy is thought to be one of ten babies worldwide born with an extremely rare condition whichhas left her intestines pushing up into her chest.
Her parents Carly Walker, 33, and Ryan Murphy, from Bedlington, Northumberland, were forced to watch from the sidelines as their daughter underwent two major operations.
The tot was born prematurely at Newcastle’s Royal Victoria Infirmary on March 31, weighing just 4lbs, Chronicle Live reports.
Rushed into surgery straight after birth and another at just four days old, Ayda is battling terrifying odds after being diagnosed with a series of incredibly rare birth defects.
An almost unique variant of gastroschisis has left her intestines pushing up into her chest.
Doctors estimate the condition, a defect of the abdominal wall, is suffered by no more than ten babies worldwide.
Meanwhile, Ayda’s heart appears to have flipped over and lies on the wrong side of her chest and she is receiving oxygen from a machine due to her underdeveloped lungs.
Coronavirus restrictions mean her parents have had to visit their little girl separately, only able to touch her around the mass of tubes and equipment which are helping her to stay alive.
Carly said: “They’ve told us she’s the poorliest baby in the North East right now.
“Her heart has completely moved left to right and flipped over. The doctors don’t know how it’s happened, it’s crazy.”
At their 20 week scan, Carly and Ryan were warned that Ayda was likely to suffer complications.
But they were determined to fight to see their little girl, who had brought a ray of sunshine into their lives already, as Carly had found out see was pregnant shortly after the death of her mum in August.
Carly said: “She’s my little miracle rainbow baby. We knew there would be complications but we didn’t know they would be this severe.”
As their “little fighter” slowly comes round after her ops, Ayda is still at serious risk.
But her parents hope she can gradually grow stronger and say she’s doing “amazingly” already.
Despite wanting nothing more than to stay by Ayda’s side, they have had to drag themselves away from the hospital each day.
Carly and Ryan were offered a room at the Sick Children’s Trust’s Crawford House, close to the hospital.
But with eight-year-old daughter Olivia Walker unable to stay with them due to Covid restrictions, they had to make the “heart-wrenching” decision to go home at night so they could be there for both girls.
Carly said: “It’s been the worst experience of my life, the hardest thing I’ve ever had to do.”
To add to their difficulties, the cost of travel back and forth from the hospital to their Northumberland home, as well as meals while they wait at the hospital, have begun to add up, mounting pressure on the new parents.
Determined to help the couple out, pal Annouska Adamson set up a GoFundMe page which has already been flooded with messages of support and more than £800 in donations.
Carly said: “I’ve had hundreds of messages on social media from people asking to help.
“I’m a bit stubborn and find it hard to ask for help, I would rather scrimp and save, but this is going to help massively.
“There are so many people who have been following her journey from the beginning.
“They’ve taken her to their hearts even though she’s not their child, and they are rooting for her.”
Despite the heartache every time they have to leave Ayda’s side, Carly and Ryan have been helped by the “amazing” support of nurses at the Special Care Baby Unit, who have sent updates and images to them throughout the night.
Carly added: “The nurses have been absolutely fantastic. They are rushed off their feet there and the work they do is unreal.”